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Who should have the final say about a child's medical treatment - doctors or parents?
Parents will be better off when they are not forced to make critical decisions for their children.
Parents of chronically ill children
prefer a passive role
in the decision making process.
Parenting sick children is already an
emotionally challenging task
. Having to make such a critical decision for one's child adds a significant amount of stress on the parents.
Parents can better fulfil the role of being supportive caregivers for their children if they are detached from the decision making process.
Studies suggest that whilst
parents want to participate in medical decisions
, some parents prefer not to make life or death decisions.
In France, where doctors are the final decision makers for treatment decisions, parents appeared
with their communication and relationship experiences with the doctors than parents in countries where decision making was more varied.
The regret of not having had any ownership or say in the decision making process may leave them more emotionally damaged because they'll feel they didn't do everything they could.
Studies suggest that
parents believe they should and want to be the ultimate decision-maker
in these situations.
Parental wellbeing should not be considered more important than a child's welfare or body autonomy.